Olga Joklová† from Jihlava was the laureate of the Olga Havel Award 2015. She was suffering from the “butterfly disease” and received this prestigious award for her enlightening activity regarding this rare illness, in cooperation with a non-governmental organisation DEBRA ČR.
Olga Joklová Jr. was suffering from an inherited disorder epidermolysis bullosa congenita (EB), in the Czech Republic also known as the “butterfly disease”. She was born in 1985, when the diagnosis was not officially recognised and there was no centre for the EB patients in the Czech Republic. Despite this severe illness, which on a daily basis caused Olga difficulties and pain (with swallowing, mobility, sleeping,…), Olga Joklová together with her mother cooperated actively with an organisation DEBRA ČR for years. “Spreading the enlightenment, which enables us to qualitatively improve lives of patients with the “butterfly disease”, became a purpose of life for Olga. In addition to a highly professional stance towards the EB diagnosis, she also contributed artistically - by singing,” says Alice Brychtová, head of DEBRA ČR. “She deserved the award for being our inspiration… for her courage to improve lives of the “butterfly children”.…and also for who she was, and the way she motivated even us - the healthy ones - to change the world,” added Alice Brychtová. Olga Joklová died in August 2015 at age 30 as a result of the illness.
The Olga Havel Award took place at the Congress Centre of the Czech National Bank in the spirit of the 25th anniversary of the Committee of Good Will - Olga Havel Foundation. The ceremony was led by Jakub Železný and an artistic performance was provided by choir Carmina Bohemica.
Thanks were given for
Significant financial support
- Café de Paris – represented by Pavel Culek, who has been contributing to the program Senior for years via Beneficial Concerts of Good Will, organised by Kocián Šolc Balaštík law firm
- Vít Melichar, ČSOB Privat Banking – longtime donor, medical aid donations for handicapped people
- Blanka Seidlová – longtime donor for the OHF
- Jiřina Šálená – together with her late husband have been frequent donors since the establishment of the OHF
- Emanuel Šíp – generous friend and supporter of the OHF
- Bohumila Fetterová from Nižbor u Berouna – teacher, who has been supplying the OHF and its sales gallery with paintings by handicapped children for years
- Ema Rónová – editor, promotion of the OHF in media
- Jana Jílková – editor, promotion of the OHF projects with regard to heath
- Anna Freimanová – documentarist from the Václav Havel Library, cooperates with the OHF on events held in memory of Olga Havel
- Linda Kaucká – ČSOB representative for CSR
Outstanding project management
- Jiří Herynek – Ergotep, cooperative for the disabled in Proseč, for the project “Ergotep for students and teachers”
- Jaroslava Jůzová – public beneficial company Alzheimercentrum Prácheň, establisher of the Prácheň sanatorium, which has grown into 9 specialised facilities for patients with the Alzheimer disease and other types of dementia
- Vendula Kalusová – chair, registered association Na svobodě, which provides help and support to people released from prison, for the project “Domov jako hodnota” (Home as a Value)
- Jiří Krejčí – director of TŘI, Čerčany civic society, manager of hospic care in the Central Bohemian region
- Petr Pašník – lecturer of controlling computers by voice, member of the Polovina nebe team acting nationwide
- Hana Vojtová – director of the Master Křišťan home for elderly people in Prachatice, lecturer of the concept of sensory activation according to Lore Wehner – education programme for employees of care houses
Photos from the Olga Havel Award ceremony