Hundreds of people said goodbye to Olga Joklová, victim of the „butterfly disease“

At the Roštejn castle, hidden in a beech forest near Telč, Olga Joklová spent the best years of her life. Here, in the courtyard under a seven-sided tower, a symbolic farewell was held to this woman, probably the most famous patient in this country suffering from an incurable disease Epideromolysis bullosa (EP) called butterfly disease.

Olga Joklová (30) died after a critical deterioration in her health and organ failure on August 16 evening at home in Jihlava surrounded by her beloved.

In May this year Olga Joklová received the Olga Havel Award for her long-term activities in favour of people with EP.

Full article

Source:, Tomáš Blažek

Photo © Jan Volejníček: Olga Joklová at the Olga Havel Award 2015

„We wish that the right for dignified life is also enjoyed by those who live with handicap or mental illness, abandoned and old people, those who have a different skin colour or a different way of life, those in poverty or attacked by a malignant disease.“ Olga Havel
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